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    • thorgalle
      10 months ago

      WIRED has a knack for clinical stories like these, they’re showing more than just a single person’s ordeal. The way the scientific medical complex moves forward seems harmful for uncertain diseases like this, brave are those pushing for more clarity throughout endless criticism.

    • DellwoodBarker10 months ago

      10 Read. Extremely interesting and swift topical read on an issue that is new to me.

      I never saw or read the film/book but this may be similar to something called Brain on Fire? or Girl on Fire? Can’t recall.

      AOTD worthy.

      Timothy likens the fighting doctors to gods in a Greek myth, doing battle on Olympus while the mortals down on the ground try to survive. He believes that the PANS treatments have worked for him and that they could do the same for other patients. “I love debate—I’m in the debate club—and I love science,” he told me. “So give people the help they need and keep debating.”

      Timothy is 14 now. He plays drums in a rock band and acts in school plays, but he still struggles to make sense of his ordeal in the early months of 2017.

    • Ruchita_Ganurkar10 months ago

      “The system is not there for them in the same way it is for other illnesses.”

      Society effect such people deeply!!